Tegretol

Re: Tegretol

feeds@yuku.com (2ryte) — Wed, 02 Jul 2008 16:58:12 GMT

Well, I don't think your doc should rule out seizures until after you've had an EEG and MRI. However, EEGs really aren't always effective as a diagnostic tool because in a lot of cases, you have to be experiencing some sort of seizure for the EEG to pick it up. I've had three EEGs and only one was abnormal. (that was after my 'grand mal.)

What's most important is your history. As I mentioned in the migraine forum, it is muy importante to keep some kind of...

Re: Tegretol

feeds@yuku.com (willocat) — Tue, 01 Jul 2008 14:44:38 GMT

I had to have bloodwork done when they put me on the Tegretol and have to get them redone in two weeks.

I hate that inconvenience.

The doctor doesn't think I'm having seizures, he thinks it's either related to my complicated basilar artery migraines or some inner ear disorder causing it. He's sending me to some ear specialists on the 9th for a battery of tests - all of which do not sound like fun. They'll determine what's going on, I guess. All I...

Re: Tegretol

feeds@yuku.com (2ryte) — Tue, 01 Jul 2008 14:21:16 GMT

I'm not sure if Cigna has access to my bloodwork. But the last time I had it checked in the clinic (not in the hospital during the VEEGs) my doc said my levels for both Topamax and Keppra were "near perfect." So who knows?! Of course the levels would be LOW while I was in the hospy because my meds were reduced!

As for editing...remember, YUKU no likey Mac. If I were to go to the PC, I'm sure I'd be able to do what I want. That's the only way I can mess...

Re: Tegretol

feeds@yuku.com (CircleCity) — Tue, 01 Jul 2008 12:23:11 GMT

Sheila, does Cigna have access to your blood labs results? I'm not sure why you cannot edit your own posts. You should be able to. My posts have an "edit" option on the left and below my photo.

Willo, I cannot imagine how wonderful it must feel to get that deep restful sleep you've missed for so long. Everybody has given great advice. Your attitude is outstanding. I hope things continue to improve for you.

Re: Tegretol

feeds@yuku.com (2ryte) — Mon, 30 Jun 2008 12:23:15 GMT

Ha ha! When I read their letter I was all, "Big Brother is watching me from somewhere! Agh!" The only thing the hubster and I can guess is, since I get my meds through Cigna, perhaps they're keeping count somehow? But that actually doesn't make sense, because I JUST filled a three month prescription in May! So obviously I'm taking the stinkin' Keppra! Very strange.

Willo...that's awesome news about the sleeping and swallowing! YAY! Sorry you're so...

Re: Tegretol

feeds@yuku.com (willocat) — Sun, 29 Jun 2008 19:09:10 GMT

Goodness, 2ryte! Are they watching you from the curb? Look outside. Quick. Are there people in dark sun glasses sitting near your house in an unmarked car? lol How would they know if you're not taking your meds?

I also meant in my previous post - but I guess I had fogged up Topa brain - that I can't sleep unless I'm propped up but now I can sleep NOT being propped up. Also, my throat isn't closed up like it was and it doesn't feel constricted when I try to...

Re: Tegretol

feeds@yuku.com (2ryte) — Sun, 29 Jun 2008 12:00:59 GMT

Ok, since I have lost the ability to Edit, I'll just add another post. grrrr. Anyway, Willo, if you would like some info. re; Tegretol (that won't scare the dickens out of you,) check this out...
http://www.cigna.com/healthinfo/hw109604.html#hw109606

I received a letter from my insurance co., Cigna, yesterday. I am now, apparantly, without my solicitation, a member of Well informed, a...

Re: Tegretol

feeds@yuku.com (2ryte) — Sun, 29 Jun 2008 11:34:11 GMT

Hola Willo..Carol is 100% correct--you'll find all of the worse case scenarios out there on the net. Not everyone experiences all of the side-effects these drugs list (except me, of course!) Tegretol is in the same family as Carbatrol, which I took for three months then dumped it. I complained about the unsteadiness to Dr. B.E., he did a quick neuro exam and I nearly fell on my face. (you know, walk a straight line, etc.)

Anyway, everyone reactes differently to each med. Yes,...

Re: Tegretol

feeds@yuku.com (willocat) — Sat, 28 Jun 2008 21:09:24 GMT

I took it last night, before bed as directed. I move up to twice a day in a week. I must say, though, that last night was the first night in a long, long time that I was able to sleep with being propped up. I even woke up this morning on my stomach, and that hasn't happened in ages. Even my husband was shocked to find me that way this morning! Usually my throat closes becuase of what must be nerve problems when I sleep and causes breathing problems and I can't sleep unless I'm...

Re: Tegretol

feeds@yuku.com (spanielsoftee) — Sat, 28 Jun 2008 13:21:59 GMT

Hi Willo,

Just remember that you will find the worst case scenario out on the net, as well as in the packaging on any med. They have to put it out there because at one time or another somebody has experienced that particular side effect. It doesn't mean you will. You possibly could, but if everyone did, nobody would take it! I took Tegretol for a while for a neuropathy years ago. As a matter of fact, I had a complete pharmacy in my drawer for that particular condition. I...

Tegretol

feeds@yuku.com (willocat) — Fri, 27 Jun 2008 19:04:23 GMT

Anyone have experience with this medicine?

I was just prescribed it for trigeminal neuralgia and noticed it's also used to treat seizures, so figured some of you seizure peeps may have experience with this med? Some of the lit out on the net is freakin' me out about this medicine! Suicidal thoughts. Extreme fatigue. Watching platelet counts and white blood cells. Yikes!